So many have felt the loss of this year. When the Covid-19 lockdown started, everyone seemed to be focused on survival until life went back to normal. However, no back to normal was in sight. Many doctors were predicting that this drastic change may last years: we were holding our breath beneath a mask, until the next week, the next month, the next year. My life, however, had already prepared me to live a little outside the norm. Sufferers of chronic disease often experience social isolation, shrinking to the sidelines. Call us wallflowers, call us whatever. I became comfortable hiding, because I was uncomfortable with people seeing my disease. It was the BIG MS, and I wanted to mask it. I was ok with laying low. I had been doing it for years.
Author: Elizabeth Rhianna
Savvy Cooperative Paid Opportunities for Adolescents living with MS, and their Parents to improve Clinical trials for Pediatric MS
Savvy Cooperative is sharing opportunities to parents of adolescents with multiple sclerosis to improve the way clinical trials are conducted. There is an opportunity also available for teens with MS.
Qigong for Symptom Relief; Tools to Ease Stress and Chronic Pain
Disclaimer: I share this information, purely for informational purposes, and as a matter of personal opinion. It is always a good idea to discuss with a healthcare professional, before starting any exercise program or alternative therapy. I've been going through a stressful time. For the first time, in the two years since I've been taking… Continue reading Qigong for Symptom Relief; Tools to Ease Stress and Chronic Pain
MSwhile…
Is anyone else a Stephen Colbert fan? A good ol' Colbert Monologue, of the Late Show with Stephen Colbert, is a way for me to digest the news, with a side of humor, so I don't get too stressed out by it. Well, this last week, the last year, the pandemic and the peaceful transition… Continue reading MSwhile…
Split Like a Tree
You weren't going to write a blog today, for the New Year coming in, and for the old one leaving. Everybody's recording their year on the eve of its end. Today just feels like another day; you're tired. However, it was warm, cloudy, and your kids really needed some outdoor activity. You did too. Your… Continue reading Split Like a Tree
Breathe
Box Breathing is a technique of breathing in for a desired count, holding for a count, releasing for a count, and holding again, then repeating the breathing exercise as needed. I remember exercising in junior high on the outdoor gymnasium. I don’t know if in PE we had been instructed to pay attention to our… Continue reading Breathe
A New Kind of Cane
An Unmet Need in Multiple Sclerosis: A Better kind of Cane!
Phew! It’s not a relapse; it’s a UTI! 😅
I've lost count of the number of UTIs I've had over the years. Some have been painful, some have had me rushing to the bathroom, but some, I didn't even know I had. I've spent the last two months occilating between symptoms, with good days in between. I estimate that I am priviledged enough that… Continue reading Phew! It’s not a relapse; it’s a UTI! 😅
MS Horror Story
Though it is a Scary Story, it’s of the realm of fiction. Therefore, it is pale when contrasted to the reality of the scary tale going on in the body of the Warriors that stand against the inner disease and demon that is MS.
Putting Yourself out there in the MS Community/ An MS Halloween
I've got butterflies in my stomach, an elated nervousness wells in my chest. These are similar to the feelings I felt while growing up in the Mormon faith. Every month we had a Fast and Testimony meeting. Entering in the chapel of our church was serene, with piano music played upon entrance and friends greeting… Continue reading Putting Yourself out there in the MS Community/ An MS Halloween