Research, Clinical Trial Information and Life Hacks on living with Multiple Sclerosis
As I hear the stainless steel cup come crashing down, I know the catastrophe before I see it. The cup, full of milk that I had just poured two minutes ago, is on the floor, white splotches and streaks on the table, some on the chair, some on him; but again, all over the floor!… Continue reading Milk Spilled; to Christina Applegate and the Newly Diagnosed
Learn how to apply for a Free Lifetime ADA Pass to the National Park Association of America. (For US Citizens and Residents.)
I'm planning to retake a six mile Mother's Day hike, I have not attempted since my relapse. I share the mediation practices, shoes, and mobility aids that have helped me hike again.
https://www.instagram.com/reel/DJuPpzkvTN1/?igsh=NTc4MTIwNjQ2YQ== DIY Fundraiser 🚫I am NOT having a relapse, I’m just experiencing a lot of symptom flares. However, this is the question people with multiple sclerosis are often faced with. I’ve asked it hundreds of times along my MS Journey of 21 years. Signs that you should look out for- 🔸Am I experiencing a new… Continue reading Am I Having a Relapse or a Symptom Flare?
How being born on Leap Year prepared me to cope, survive, and sometimes even thrive while living with multiple sclerosis. Multiple Sclerosis, along with many other chronic illnesses, is often referred to as an Invisible disease. Patchy damage caused by an autoimmune response damaging the coating of neural pathways that transmit signals from our brain… Continue reading Yesterday I celebrated my 10th birthday, and now to fighting MS for the 20th year. How old am I? 😆
Something on your "to-do list" that never gets done. Writing something in this blog has been on my to do list for many months. I write a draft. Get tired. Can’t see my way to finishing it, then finally feel like it’s time has past. I have so, so many drafts. So just saying who… Continue reading Something on my To-do list
Trying to work during a symptom flare 🙃🙃🙃 I have so many goals for this blog this year. I want to: tell the story of my 19 years with MS- and turn it into a book for my 20 year MSiversary. I want to share more links about clinical trials and ongoing Multiple Sclerosis Research.… Continue reading aHSCT Clinical Trial Currently Recruiting, and my 2023 MS Goals
For Halloween, let’s take our fear of MRIs away from lesions, anxiety and claustrophobia; and enjoy a scary story. 🎃👻💀🧟♀️
ms GUIDED Bits 