My MS Specialist is Retiring!?! Tragedy, or a New Opportunity? – Searching for a New Specialist and a New Remyelination Clinical Trial

This blog post consists of opinions, my own experience, and helpful resources. Any major treatment decisions, or anything regarding your own, individual MS and Health should always be discussed with your health care professional. Links appear to helpful resources. Clicking them will open up a new tab, so you won't loose your place in the... Continue Reading →

Vaccinated and Immunocompromised – Getting Back to Normal with Unvaccinated Kids ๐Ÿ˜ณ๐Ÿ™ƒ๐Ÿค”๐Ÿ˜Š?

It's almost Summertime. We celebrated my daughter's eighth birthday and we are making plans. We purchased tickets to fly to Utah next month. We get to see family again, make plans, and I get to return back to California, to my husband and my MS Specialist, and yes, I am equally happy about both. This post will share my my experience receiving the vaccine, as well as my feelings going forward, my hesitations and my hopefulness.

Choosing an MS Medication and Finding the Best Therapy Option for You and your Fight against MS

Disclaimer: This blog is composed of my own experience and thoughts, dealing with my own RRMS. What works for me, may not necessarily work for you. Discuss your treatment options with your health care professionals. If you don't feel heard, or understood, you have the right to seek out a new doctor. This is your... Continue Reading →

Mobility Challenges after an MS Relapse- A Motherโ€™s Day Hike

I'm planning to retake a six mile Mother's Day hike, I have not attempted since my relapse. I share the mediation practices, shoes, and mobility aids that have helped me hike again.

MSwhile Part 2: Vaccines, Elezanumab Trial, and A MS Performance

Small Disclaimer: The following post is through the lens of my experience with MS, and is only meant for informational purposes. Always discuss with your healthcare provider, neurologist, or MS Specialist, any changes you want to make to the management of your MS. Links are provided for more information, and will open in a new... Continue Reading →

Sexual Harassment in the Chronic Community

I've been working on that promised blog about the shoes that have helped me walk, during my 17 years of MS, but there's something pressing, going through my mind, that I don't want to ignore. The tragedies, shootings, and murders that occurred over the last couple weeks have stirred the nation. We should be moved... Continue Reading →

Do my OPCs have PTSD???

All within this blog is limited, and through my own lens of understanding, as a patient with MS. I try to summarize the research of Dr. Bergels and his team, but I mostly likely fall short. I apologize for any mistakes and thank you for your patience with them. However, I provide lots of links... Continue Reading →

2020, A Leaped Year

So many have felt the loss of this year. When the Covid-19 lockdown started, everyone seemed to be focused on survival until life went back to normal. However, no back to normal was in sight. Many doctors were predicting that this drastic change may last years: we were holding our breath beneath a mask, until the next week, the next month, the next year. My life, however, had already prepared me to live a little outside the norm. Sufferers of chronic disease often experience social isolation, shrinking to the sidelines. Call us wallflowers, call us whatever. I became comfortable hiding, because I was uncomfortable with people seeing my disease. It was the BIG MS, and I wanted to mask it. I was ok with laying low. I had been doing it for years.

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