Healing Journey
A Disease by any other name…
What’s in a Name? We all know what’s next, “a rose by any other name, would smell as sweet.” The line from Romeo’s soliloquy, and a little tidbit I identified with, in freshman English class from my chameleon-like array of names. I mentioned in my first blog, that my blog title, and screenname, is both... Continue Reading →
The New Normal, living with Daily MS Symptoms
I had a wonderful evening, spending time with family while overlooking the South African ocean. Tuning into life, instead of my MS and symptoms helps them feel less present and less pervasive. The problem with MS is symptoms are new or in flux. They don’t always feel the same. For me I have a baseline... Continue Reading →
What it feels like to have MS
What follows is my answer to the question above that I found on Quora The feelings of multiple sclerosis are described by the name of the disease. Just as there are multiple scars there are numerous feelings those create. This moment as I’m sitting here typing this, if I tune into my body I start... Continue Reading →
MS specialist tries four MS drugs just to experience the side effects first hand.
This morning I found Dr. Brandon Beaber, a neurologist and MS Specialist in Downey, California for Kaiser Permeante. The video is entertaining and it makes me feel good inside to know that he cares enough about the MS experience to risk discomfort and side effects. It’s refreshing to see more neurologists and MS specialists interested... Continue Reading →
Update on my participation in the clinical trial for the remyelination drug elezanumab .
http://www.youtube.com/watch I will try to get a post up soon, but in the meantime watch this interview that I did with Damian Washington on my progress in the clinical trial. 🙏🏼🧡
ms GUIDED Bits 