Pain and Hurt from a Narcissistic Disease- the Draw and Repulsion Of MS Pain- My story

Can you remember having a loose tooth as a child. It hurt, just a little. The pain drew you in. You wanted to touch it. You wanted to experiment with that pain. There was a sharp edge, but that imparted an exquisite knowledge of the world. This pain was necessary to growing up. There is... Continue Reading →

Clinical Trial Appointment Week 52 of the Remyelination Drug Elezanumab for Multiple Sclerosis

I was nervous on the drive to my clinical trial appointment this morning. I had that nagging feeling I had forgotten something. I had my purse, my phone, some snacks... but not my cane! 😱

A Hot MS, Damian Washington, and a little about my adventures with mobility aids

Kids are still asleep so I'm taking a minute to type up a blog. Damian Washington's Interview with Brittney Quiroz of A Hot MS popped up on my feed this morning and started the day out right, getting inspired. Damian Washington talks to Brittney about her experience with MS, her blog, and how she still... Continue Reading →

The New Normal (Old draft I didn’t post from last summer)

Had a wonderful evening, spending time with family. Tuning into life instead of my MS and symptoms helps them feel less present and less pervasive. The problem with MS is symptoms are new or in flux. They don’t always feel the same. For me I have a baseline numbness that blends into the background. If... Continue Reading →

MS specialist tries four MS drugs just to experience the side effects first hand.

This morning I found Dr. Brandon Beaber, a neurologist and MS Specialist in Downey, California for Kaiser Permeante. The video is entertaining and it makes me feel good inside to know that he cares enough about the MS experience to risk discomfort and side effects. It’s refreshing to see more neurologists and MS specialists interested... Continue Reading →

Update on my participation in the clinical trial for the remyelination drug elezanumab .

http://www.youtube.com/watch I will try to get a post up soon, but in the meantime watch this interview that I did with Damian Washington on my progress in the clinical trial. 🙏🏼🧡

The Ups and Downs of Day to Day MS Symptoms

On the left a current pic of me rocking my cane. The right when I started this journey with all the injection site reactions that went with it. I was diagnosed at 20 years old with RRMS.  At first I just had fatigue, some tingling, and numbness that came with a relapse and went away.... Continue Reading →

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