Ocrevus Infusion Day!
A Disease by any other name…
What’s in a Name? We all know what’s next, “a rose by any other name, would smell as sweet.” The line from Romeo’s soliloquy, and a little tidbit I identified with, in freshman English class from my chameleon-like array of names. I mentioned in my first blog, that my blog title, and screenname, is both... Continue Reading →
Clinical Trial Appointment Week 52 of the Remyelination Drug Elezanumab for Multiple Sclerosis
I was nervous on the drive to my clinical trial appointment this morning. I had that nagging feeling I had forgotten something. I had my purse, my phone, some snacks... but not my cane! 😱
A Hot MS, Damian Washington, and a little about my adventures with mobility aids
Kids are still asleep so I'm taking a minute to type up a blog. Damian Washington's Interview with Brittney Quiroz of A Hot MS popped up on my feed this morning and started the day out right, getting inspired. Damian Washington talks to Brittney about her experience with MS, her blog, and how she still... Continue Reading →
The Coronavirus (COVID-19) and the Immunocompromised/ Chronic disease community
Disclaimer- I am not a health professional. The opinions shared in this article are just my opinions. I am also sharing informational resources. Always discuss your healthcare concerns with a medical professional. I have to admit that the coronavirus has not been ringing my alarm bells. I am a person on a Disease Modifying (DMT)... Continue Reading →
The New Normal (Old draft I didn’t post from last summer)
Had a wonderful evening, spending time with family. Tuning into life instead of my MS and symptoms helps them feel less present and less pervasive. The problem with MS is symptoms are new or in flux. They don’t always feel the same. For me I have a baseline numbness that blends into the background. If... Continue Reading →
What it feels like to have MS
What follows is my answer to the question above that I found on Quora The feelings of multiple sclerosis are described by the name of the disease. Just as there are multiple scars there are numerous feelings those create. This moment as I’m sitting here typing this, if I tune into my body I start... Continue Reading →
ms GUIDED Bits 