Elezanumab, an investigational remyelination medication to repair damage in Multiple Sclerosis is now available under the FDA Expanded Access Program.
So many have felt the loss of this year. When the Covid-19 lockdown started, everyone seemed to be focused on survival until life went back to normal. However, no back to normal was in sight. Many doctors were predicting that this drastic change may last years: we were holding our breath beneath a mask, until the next week, the next month, the next year. My life, however, had already prepared me to live a little outside the norm. Sufferers of chronic disease often experience social isolation, shrinking to the sidelines. Call us wallflowers, call us whatever. I became comfortable hiding, because I was uncomfortable with people seeing my disease. It was the BIG MS, and I wanted to mask it. I was ok with laying low. I had been doing it for years.
Savvy Cooperative is sharing opportunities to parents of adolescents with multiple sclerosis to improve the way clinical trials are conducted. There is an opportunity also available for teens with MS.
Disclaimer: I share this information, purely for informational purposes, and as a matter of personal opinion. It is always a good idea to discuss with a healthcare professional, before starting any exercise program or alternative therapy. I've been going through a stressful time. For the first time, in the two years since I've been taking... Continue Reading →
Is anyone else a Stephen Colbert fan? A good ol' Colbert Monologue, of the Late Show with Stephen Colbert, is a way for me to digest the news, with a side of humor, so I don't get too stressed out by it. Well, this last week, the last year, the pandemic and the peaceful transition... Continue Reading →
You weren't going to write a blog today, for the New Year coming in, and for the old one leaving. Everybody's recording their year on the eve of its end. Today just feels like another day; you're tired. However, it was warm, cloudy, and your kids really needed some outdoor activity. You did too. Your... Continue Reading →
Box Breathing is a technique of breathing in for a desired count, holding for a count, releasing for a count, and holding again, then repeating the breathing exercise as needed. I remember exercising in junior high on the outdoor gymnasium. I don’t know if in PE we had been instructed to pay attention to our... Continue Reading →
I've lost count of the number of UTIs I've had over the years. Some have been painful, some have had me rushing to the bathroom, but some, I didn't even know I had. I've spent the last two months occilating between symptoms, with good days in between. I estimate that I am priviledged enough that... Continue Reading →