Vaccinated and Immunocompromised – Getting Back to Normal with Unvaccinated Kids πŸ˜³πŸ™ƒπŸ€”πŸ˜Š?

It's almost Summertime. We celebrated my daughter's eighth birthday and we are making plans. We purchased tickets to fly to Utah next month. We get to see family again, make plans, and I get to return back to California, to my husband and my MS Specialist, and yes, I am equally happy about both. This post will share my my experience receiving the vaccine, as well as my feelings going forward, my hesitations and my hopefulness.

Pain and Hurt from a Narcissistic Disease- the Draw and Repulsion Of MS Pain- My story

Can you remember having a loose tooth as a child. It hurt, just a little. The pain drew you in. You wanted to touch it. You wanted to experiment with that pain. There was a sharp edge, but that imparted an exquisite knowledge of the world. This pain was necessary to growing up. There is... Continue Reading →

Clinical Trial Appointment Week 52 of the Remyelination Drug Elezanumab for Multiple Sclerosis

I was nervous on the drive to my clinical trial appointment this morning. I had that nagging feeling I had forgotten something. I had my purse, my phone, some snacks... but not my cane! 😱

A Hot MS, Damian Washington, and a little about my adventures with mobility aids

Kids are still asleep so I'm taking a minute to type up a blog. Damian Washington's Interview with Brittney Quiroz of A Hot MS popped up on my feed this morning and started the day out right, getting inspired. Damian Washington talks to Brittney about her experience with MS, her blog, and how she still... Continue Reading →

The New Normal (Old draft I didn’t post from last summer)

Had a wonderful evening, spending time with family. Tuning into life instead of my MS and symptoms helps them feel less present and less pervasive. The problem with MS is symptoms are new or in flux. They don’t always feel the same. For me I have a baseline numbness that blends into the background. If... Continue Reading →

What it feels like to have MS

What follows is my answer to the question above that I found on Quora The feelings of multiple sclerosis are described by the name of the disease. Just as there are multiple scars there are numerous feelings those create. This moment as I’m sitting here typing this, if I tune into my body I start... Continue Reading →

MS specialist tries four MS drugs just to experience the side effects first hand.

This morning I found Dr. Brandon Beaber, a neurologist and MS Specialist in Downey, California for Kaiser Permeante. The video is entertaining and it makes me feel good inside to know that he cares enough about the MS experience to risk discomfort and side effects. It’s refreshing to see more neurologists and MS specialists interested... Continue Reading →

Going Forward: My Participation in the Clinical Trial for the Remylenation Medication Elezanumab

Hi, my name is Elizabeth, aka msGuidedbits. I have had relapsing/remitting multiple sclerosis for nearly 16 years. It’s been a 15 year struggle; out of two disabling relapses, through fatigue, and managing encroaching numbness. I used to pretty much keep my MS under wraps. I would largely avoid social interactions because I was afraid of... Continue Reading →

Update on my participation in the clinical trial for the remyelination drug elezanumab .

http://www.youtube.com/watch I will try to get a post up soon, but in the meantime watch this interview that I did with Damian Washington on my progress in the clinical trial. πŸ™πŸΌπŸ§‘

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