My MS Specialist is Retiring!?! Tragedy, or a New Opportunity? – Searching for a New Specialist and a New Remyelination Clinical Trial

This blog post consists of opinions, my own experience, and helpful resources. Any major treatment decisions, or anything regarding your own, individual MS and Health should always be discussed with your health care professional. Links appear to helpful resources. Clicking them will open up a new tab, so you won't loose your place in the... Continue Reading →

Vaccinated and Immunocompromised – Getting Back to Normal with Unvaccinated Kids πŸ˜³πŸ™ƒπŸ€”πŸ˜Š?

It's almost Summertime. We celebrated my daughter's eighth birthday and we are making plans. We purchased tickets to fly to Utah next month. We get to see family again, make plans, and I get to return back to California, to my husband and my MS Specialist, and yes, I am equally happy about both. This post will share my my experience receiving the vaccine, as well as my feelings going forward, my hesitations and my hopefulness.

Savvy Cooperative Paid Opportunities for Adolescents living with MS, and their Parents to improve Clinical trials for Pediatric MS

Savvy Cooperative is sharing opportunities to parents of adolescents with multiple sclerosis to improve the way clinical trials are conducted. There is an opportunity also available for teens with MS.

Split Like a Tree

You weren't going to write a blog today, for the New Year coming in, and for the old one leaving. Everybody's recording their year on the eve of its end. Today just feels like another day; you're tired. However, it was warm, cloudy, and your kids really needed some outdoor activity. You did too. Your... Continue Reading →

Phew! It’s not a relapse; it’s a UTI! πŸ˜…

I've lost count of the number of UTIs I've had over the years. Some have been painful, some have had me rushing to the bathroom, but some, I didn't even know I had. I've spent the last two months occilating between symptoms, with good days in between. I estimate that I am priviledged enough that... Continue Reading →

Tight Rope, Frayed Wire & Sandy Feet

(Text linked to websites, videos, and articles I used as sources for this blog post. Feel free to click, as the link will bring up a new tab and you won't use your place in the blog.) Elezanumab is another humanized monoclonal antibody currently tested in phase 2 clinical trials for RMS and PMS. This... Continue Reading →

From California to NC- Ocrevus, Elezanumab, Clinical Trials, Homeschooling, and a freaking long distance relationship with my Husband?!?

My four year old crawled in bed with me this morning. I've been keeping a late schedule since we traveled across the country and relocated in North Carolina. However, it's hard to fall back asleep without my husband in my bed. So, I thought to write a post I’d been keeping in the back of... Continue Reading →

Pain and Hurt from a Narcissistic Disease- the Draw and Repulsion Of MS Pain- My story

Can you remember having a loose tooth as a child. It hurt, just a little. The pain drew you in. You wanted to touch it. You wanted to experiment with that pain. There was a sharp edge, but that imparted an exquisite knowledge of the world. This pain was necessary to growing up. There is... Continue Reading →

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