I've lost count of the number of UTIs I've had over the years. Some have been painful, some have had me rushing to the bathroom, but some, I didn't even know I had. I've spent the last two months occilating between symptoms, with good days in between. I estimate that I am priviledged enough that... Continue Reading →
Tight Rope, Frayed Wire & Sandy Feet
(Text linked to websites, videos, and articles I used as sources for this blog post. Feel free to click, as the link will bring up a new tab and you won't use your place in the blog.) Elezanumab is another humanized monoclonal antibody currently tested in phase 2 clinical trials for RMS and PMS. This... Continue Reading →
From California to NC- Ocrevus, Elezanumab, Clinical Trials, Homeschooling, and a freaking long distance relationship with my Husband?!?
My four year old crawled in bed with me this morning. I've been keeping a late schedule since we traveled across the country and relocated in North Carolina. However, it's hard to fall back asleep without my husband in my bed. So, I thought to write a post I’d been keeping in the back of... Continue Reading →
Clinical Trial Appointment Week 52 of the Remyelination Drug Elezanumab for Multiple Sclerosis
I was nervous on the drive to my clinical trial appointment this morning. I had that nagging feeling I had forgotten something. I had my purse, my phone, some snacks... but not my cane! 😱
A Hot MS, Damian Washington, and a little about my adventures with mobility aids
Kids are still asleep so I'm taking a minute to type up a blog. Damian Washington's Interview with Brittney Quiroz of A Hot MS popped up on my feed this morning and started the day out right, getting inspired. Damian Washington talks to Brittney about her experience with MS, her blog, and how she still... Continue Reading →
MS specialist tries four MS drugs just to experience the side effects first hand.
This morning I found Dr. Brandon Beaber, a neurologist and MS Specialist in Downey, California for Kaiser Permeante. The video is entertaining and it makes me feel good inside to know that he cares enough about the MS experience to risk discomfort and side effects. It’s refreshing to see more neurologists and MS specialists interested... Continue Reading →
Going Forward: My Participation in the Clinical Trial for the Remylenation Medication Elezanumab
Hi, my name is Elizabeth, aka msGuidedbits. I have had relapsing/remitting multiple sclerosis for nearly 16 years. It’s been a 15 year struggle; out of two disabling relapses, through fatigue, and managing encroaching numbness. I used to pretty much keep my MS under wraps. I would largely avoid social interactions because I was afraid of... Continue Reading →
Update on my participation in the clinical trial for the remyelination drug elezanumab .
http://www.youtube.com/watch I will try to get a post up soon, but in the meantime watch this interview that I did with Damian Washington on my progress in the clinical trial. 🙏🏼🧡