Research, Clinical Trial Information and Life Hacks on living with Multiple Sclerosis
Kids are still asleep so I'm taking a minute to type up a blog. Damian Washington's Interview with Brittney Quiroz of A Hot MS popped up on my feed this morning and started the day out right, getting inspired. Damian Washington talks to Brittney about her experience with MS, her blog, and how she still... Continue Reading →
This title has been floating around in my mind for awhile. Just two weeks ago I was in an exam room at the UCI Clinical Research Park. I am currently enrolled in a trial for the remyelination drug elezanumab. Real quick, a little medical jargon and background on the drug elezanumab: "Elezanumab is a fully... Continue Reading →
Disclaimer- I am not a health professional. The opinions shared in this article are just my opinions. I am also sharing informational resources. Always discuss your healthcare concerns with a medical professional. I have to admit that the coronavirus has not been ringing my alarm bells. I am a person on a Disease Modifying (DMT)... Continue Reading →
I had a wonderful evening, spending time with family while overlooking the South African ocean. Tuning into life, instead of my MS and symptoms helps them feel less present and less pervasive. The problem with MS is symptoms are new or in flux. They don’t always feel the same. For me I have a baseline... Continue Reading →
What follows is my answer to the question above that I found on Quora The feelings of multiple sclerosis are described by the name of the disease. Just as there are multiple scars there are numerous feelings those create. This moment as I’m sitting here typing this, if I tune into my body I start... Continue Reading →
Tomorrow I am going in for my seventh infusion in the clinical trial of the remyelination drug elezanumab. For the first three infusions after I came home I was really wiped out. I rested in bed for two days as much as possible despite having two very active small children. I was exhausted. It’s a... Continue Reading →
This morning I found Dr. Brandon Beaber, a neurologist and MS Specialist in Downey, California for Kaiser Permeante. The video is entertaining and it makes me feel good inside to know that he cares enough about the MS experience to risk discomfort and side effects. It’s refreshing to see more neurologists and MS specialists interested... Continue Reading →
Hi, my name is Elizabeth, aka msGuidedbits. I have had relapsing/remitting multiple sclerosis for nearly 16 years. It’s been a 15 year struggle; out of two disabling relapses, through fatigue, and managing encroaching numbness. I used to pretty much keep my MS under wraps. I would largely avoid social interactions because I was afraid of... Continue Reading →
http://www.youtube.com/watch I will try to get a post up soon, but in the meantime watch this interview that I did with Damian Washington on my progress in the clinical trial. 🙏🏼🧡
I apologize that I haven’t given you guys an update via the blog yet. Drum roll….. I was accepted to the trial and I have received my first two infusions. I’ll give you a little break down of what goes on during these appointments. My baseline 25 step test, 9 hole peg test, clinical... Continue Reading →
ms GUIDED Bits 