These are my own experiences and not medical recommendations, for informational purposes. Please discuss any treatment plans with your medical professional, doctor, neurologist, or MS Specialist. Click any Link in Red Ink to be taken to links, such as the clinical trial. ๐๐ผ๐งก I didnโt really understand spasticity when I was diagnosed with MS. I... Continue Reading →
MSwhile: Homeschool, Crap Gap, Insurance Drama and All the Other Bits of Life
Iโm hanging in there. Last night I put my faith in the parts of my brain that still work on dedicated walks, to attempt to take the dog on a walk with my husband. I got a half a block and felt my body working hard to get oxygen in my lungs. Ever since my... Continue Reading →
Jim Hill, a Caregiver to his beloved partner with MS, Ira, is killed in a Russian Attack
I woke, feeling like I was within my rights to go back to bed. It used to be 6:30 just last week, after all. I tried to deep breath and meditate in the calm before the kids woke, but awake brain, and my phoneโฆ I came upon Cathy Chesterโs post on IG, about a cargiver... Continue Reading →
My Birthday; the Invisible Moment between Rare Disease Day and MS Awareness Month
My disease, Multiple Sclerosis , isnโt so rare anymore; with an estimated 1 million in the US, and 2.8 million in the world diagnosed. I was two weeks away from my birthday in the above photo. My boyfriend had just sent me flowers for Valentineโs Day and a strange tingling is spreading on my left... Continue Reading →
Where is the Wheelchair Kamikaze???
There werenโt so many MS blogs 15 years ago, when I was looking for companionship, comrade, anyone else with MS! I was 25, dealing with the disease for five years and I had met like two other people with it. I was a voracious reader, and I was searching for something, someone. I found the... Continue Reading →