Research, Clinical Trial Information and Life Hacks on living with Multiple Sclerosis
(Text linked to websites, videos, and articles I used as sources for this blog post. Feel free to click, as the link will bring up a new tab and you won't use your place in the blog.) Elezanumab is another humanized monoclonal antibody currently tested in phase 2 clinical trials for RMS and PMS. This… Continue reading Tight Rope, Frayed Wire & Sandy Feet
Elezanumab, is a hoped for remyelination medication being tested for effectiveness and safety in SPMS, RRMS, and PPMS. There is also a separate phase 2 study being conducted for spinal cord injury, and that trial has been awarded by the FDA orphan drug and fast track status.
We set a target departure time for 12 pm on Monday. However, the trailer wasn't ready yet, nor was I really. Though I started packing weeks ago, there were so many loose ends, and loose clothing... I was grateful for those extra hours. We started out at 7 pm, bidding farewell to a Southern California… Continue reading From California to NC- Ocrevus, Elezanumab, Clinical Trials, Homeschooling, and a freaking long distance relationship with my Husband?!? Part Two
My four year old crawled in bed with me this morning. I've been keeping a late schedule since we traveled across the country and relocated in North Carolina. However, it's hard to fall back asleep without my husband in my bed. So, I thought to write a post I’d been keeping in the back of… Continue reading From California to NC- Ocrevus, Elezanumab, Clinical Trials, Homeschooling, and a freaking long distance relationship with my Husband?!?
Can you remember having a loose tooth as a child. It hurt, just a little. The pain drew you in. You wanted to touch it. You wanted to experiment with that pain. There was a sharp edge, but that imparted an exquisite knowledge of the world. This pain was necessary to growing up. There is… Continue reading Pain and Hurt from a Narcissistic Disease- the Draw and Repulsion Of MS Pain- My story
I was nervous on the drive to my clinical trial appointment this morning. I had that nagging feeling I had forgotten something. I had my purse, my phone, some snacks... but not my cane! 😱
ms GUIDED Bits 