Research, Clinical Trial Information and Life Hacks on living with Multiple Sclerosis
My disease, Multiple Sclerosis , isn’t so rare anymore; with an estimated 1 million in the US, and 2.8 million in the world diagnosed. I was two weeks away from my birthday in the above photo. My boyfriend had just sent me flowers for Valentine’s Day and a strange tingling is spreading on my left… Continue reading My Birthday; the Invisible Moment between Rare Disease Day and MS Awareness Month
There weren’t so many MS blogs 15 years ago, when I was looking for companionship, comrade, anyone else with MS! I was 25, dealing with the disease for five years and I had met like two other people with it. I was a voracious reader, and I was searching for something, someone. I found the… Continue reading Where is the Wheelchair Kamikaze???
Remyelination; the Holy Grail of Multiple Sclerosis Research. You can be an active participant in this research, by applying for one of the Seven Clinical Trials listed in this Blog! 🤞🏼🧡
Was that 12 year old, celebrating her fourth real birthday, about to contract the Epstien-Barr Virus, leading to the activation of Multiple Sclerosis, and a diagnosis 8 years later?
What’s in a Name? We all know what’s next, “a rose by any other name, would smell as sweet.” The line from Romeo’s soliloquy, and a little tidbit I identified with, in freshman English class from my chameleon-like array of names. I mentioned in my first blog, that my blog title, and screenname, is both… Continue reading A Disease by any other name…
ms GUIDED Bits 