multiple sclerosis

Yesterday I celebrated my 10th birthday, and now to fighting MS for the 20th year. How old am I? 😆

How being born on Leap Year prepared me to cope, survive, and sometimes even thrive while living with multiple sclerosis.  Multiple Sclerosis, along with many other chronic illnesses, is often referred to as an Invisible disease.  Patchy damage caused by an autoimmune response damaging the coating of neural pathways that transmit signals from our brain… Continue reading Yesterday I celebrated my 10th birthday, and now to fighting MS for the 20th year. How old am I? 😆

ahsct, multiple sclerosis

aHSCT Clinical Trial Currently Recruiting, and my 2023 MS Goals

Trying to work during a symptom flare 🙃🙃🙃 I have so many goals for this blog this year. I want to: tell the story of my 19 years with MS- and turn it into a book for my 20 year MSiversary. I want to share more links about clinical trials and ongoing Multiple Sclerosis Research.… Continue reading aHSCT Clinical Trial Currently Recruiting, and my 2023 MS Goals

multiple sclerosis

The Paradox of Feeling less with MS; but also too much!

Last night before I went to bed I felt the numbness and tingling that begins in my feet and extends up my calves, start to reach its smoky tendrils further up my left leg. I contemplated on the feeling as I lay in bed between my husband and six year old. There’s not much more… Continue reading The Paradox of Feeling less with MS; but also too much!

multiple sclerosis

A Disease by any other name…

What’s in a Name? We all know what’s next, “a rose by any other name, would smell as sweet.” The line from Romeo’s soliloquy, and a little tidbit I identified with, in freshman English class from my chameleon-like array of names.  I mentioned in my first blog, that my blog title, and screenname, is both… Continue reading A Disease by any other name…