Research, Clinical Trial Information and Life Hacks on living with Multiple Sclerosis
How being born on Leap Year prepared me to cope, survive, and sometimes even thrive while living with multiple sclerosis. Multiple Sclerosis, along with many other chronic illnesses, is often referred to as an Invisible disease. Patchy damage caused by an autoimmune response damaging the coating of neural pathways that transmit signals from our brain… Continue reading Yesterday I celebrated my 10th birthday, and now to fighting MS for the 20th year. How old am I? 😆
Trying to work during a symptom flare 🙃🙃🙃 I have so many goals for this blog this year. I want to: tell the story of my 19 years with MS- and turn it into a book for my 20 year MSiversary. I want to share more links about clinical trials and ongoing Multiple Sclerosis Research.… Continue reading aHSCT Clinical Trial Currently Recruiting, and my 2023 MS Goals
For Halloween, let’s take our fear of MRIs away from lesions, anxiety and claustrophobia; and enjoy a scary story. 🎃👻💀🧟♀️
Last night before I went to bed I felt the numbness and tingling that begins in my feet and extends up my calves, start to reach its smoky tendrils further up my left leg. I contemplated on the feeling as I lay in bed between my husband and six year old. There’s not much more… Continue reading The Paradox of Feeling less with MS; but also too much!
ms GUIDED Bits 