What follows is my answer to the question above that I found on Quora The feelings of multiple sclerosis are described by the name of the disease. Just as there are multiple scars there are numerous feelings those create. This moment as I’m sitting here typing this, if I tune into my body I start… Continue reading What it feels like to have MS
Author: Elizabeth Rhianna
Tomorrow’s Remyelination Infusion of Elezanumab
Tomorrow I am going in for my seventh infusion in the clinical trial of the remyelination drug elezanumab. For the first three infusions after I came home I was really wiped out. I rested in bed for two days as much as possible despite having two very active small children. I was exhausted. It’s a… Continue reading Tomorrow’s Remyelination Infusion of Elezanumab
MS specialist tries four MS drugs just to experience the side effects first hand.
This morning I found Dr. Brandon Beaber, a neurologist and MS Specialist in Downey, California for Kaiser Permeante. The video is entertaining and it makes me feel good inside to know that he cares enough about the MS experience to risk discomfort and side effects. It’s refreshing to see more neurologists and MS specialists interested… Continue reading MS specialist tries four MS drugs just to experience the side effects first hand.
Going Forward: My Participation in the Clinical Trial for the Remylenation Medication Elezanumab
Hi, my name is Elizabeth, aka msGuidedbits. I have had relapsing/remitting multiple sclerosis for nearly 16 years. It’s been a 15 year struggle; out of two disabling relapses, through fatigue, and managing encroaching numbness. I used to pretty much keep my MS under wraps. I would largely avoid social interactions because I was afraid of… Continue reading Going Forward: My Participation in the Clinical Trial for the Remylenation Medication Elezanumab
Update on my participation in the clinical trial for the remyelination drug elezanumab .
http://www.youtube.com/watch I will try to get a post up soon, but in the meantime watch this interview that I did with Damian Washington on my progress in the clinical trial. 🙏🏼🧡
Clinical Trial- Acceptance to Infusion #3
I apologize that I haven’t given you guys an update via the blog yet. Drum roll….. I was accepted to the trial and I have received my first two infusions. I’ll give you a little break down of what goes on during these appointments. My baseline 25 step test, 9 hole peg test, clinical… Continue reading Clinical Trial- Acceptance to Infusion #3
Clinical Trial for the Regenerative Medication Elezanumab- A patient’s perspective
Are you interested in becoming a guinea pig for scientific research? I never was, until something dramatic happened to me to change my mind. Here’s a little background. I have lived with relapsing remitting multiple sclerosis for 15 years. I hit the lottery, the one you don’t want to hit. I was diagnosed at the… Continue reading Clinical Trial for the Regenerative Medication Elezanumab- A patient’s perspective
What’s one of your Happy and Treasured Memories?
In a recent live chat in MS Buddy, Kathy Regan Young, MS Buddy Guide, asked buddies to share one of their happiest Memories- this an expanded version of what I shared : There is a pretty waterfall, surrounded by lush deciduous forest. Construed amongst all this green is a rust tinged, tannin rich pool of… Continue reading What’s one of your Happy and Treasured Memories?
The Ups and Downs of Day to Day MS Symptoms
On the left a current pic of me rocking my cane. The right when I started this journey with all the injection site reactions that went with it. I was diagnosed at 20 years old with RRMS. At first I just had fatigue, some tingling, and numbness that came with a relapse and went away.… Continue reading The Ups and Downs of Day to Day MS Symptoms
MSguided Bits
My brain is like a maze with sections obscured by lesions- attacks of a malfunctioning immune system. I began my life being called Elizabeth. When I was a baby, my toddler brother could not pronounce the complicated name my parents chose. It came out “little bit.” At five, being called Little Bits, Elizabeth, Bits, Bitties,… Continue reading MSguided Bits
ms GUIDED Bits 