Research, Clinical Trial Information and Life Hacks on living with Multiple Sclerosis
How being born on Leap Year prepared me to cope, survive, and sometimes even thrive while living with multiple sclerosis. Multiple Sclerosis, along with many other chronic illnesses, is often referred to as an Invisible disease. Patchy damage caused by an autoimmune response damaging the coating of neural pathways that transmit signals from our brain… Continue reading Yesterday I celebrated my 10th birthday, and now to fighting MS for the 20th year. How old am I? 😆
Trying to work during a symptom flare 🙃🙃🙃 I have so many goals for this blog this year. I want to: tell the story of my 19 years with MS- and turn it into a book for my 20 year MSiversary. I want to share more links about clinical trials and ongoing Multiple Sclerosis Research.… Continue reading aHSCT Clinical Trial Currently Recruiting, and my 2023 MS Goals
My four year old crawled in bed with me this morning. I've been keeping a late schedule since we traveled across the country and relocated in North Carolina. However, it's hard to fall back asleep without my husband in my bed. So, I thought to write a post I’d been keeping in the back of… Continue reading From California to NC- Ocrevus, Elezanumab, Clinical Trials, Homeschooling, and a freaking long distance relationship with my Husband?!?
I was nervous on the drive to my clinical trial appointment this morning. I had that nagging feeling I had forgotten something. I had my purse, my phone, some snacks... but not my cane! 😱
Kids are still asleep so I'm taking a minute to type up a blog. Damian Washington's Interview with Brittney Quiroz of A Hot MS popped up on my feed this morning and started the day out right, getting inspired. Damian Washington talks to Brittney about her experience with MS, her blog, and how she still… Continue reading A Hot MS, Damian Washington, and a little about my adventures with mobility aids
This morning I found Dr. Brandon Beaber, a neurologist and MS Specialist in Downey, California for Kaiser Permeante. The video is entertaining and it makes me feel good inside to know that he cares enough about the MS experience to risk discomfort and side effects. It’s refreshing to see more neurologists and MS specialists interested… Continue reading MS specialist tries four MS drugs just to experience the side effects first hand.
Hi, my name is Elizabeth, aka msGuidedbits. I have had relapsing/remitting multiple sclerosis for nearly 16 years. It’s been a 15 year struggle; out of two disabling relapses, through fatigue, and managing encroaching numbness. I used to pretty much keep my MS under wraps. I would largely avoid social interactions because I was afraid of… Continue reading Going Forward: My Participation in the Clinical Trial for the Remylenation Medication Elezanumab
http://www.youtube.com/watch I will try to get a post up soon, but in the meantime watch this interview that I did with Damian Washington on my progress in the clinical trial. 🙏🏼🧡
ms GUIDED Bits 