Research, Clinical Trial Information and Life Hacks on living with Multiple Sclerosis
(Text linked to websites, videos, and articles I used as sources for this blog post. Feel free to click, as the link will bring up a new tab and you won't use your place in the blog.) Elezanumab is another humanized monoclonal antibody currently tested in phase 2 clinical trials for RMS and PMS. This… Continue reading Tight Rope, Frayed Wire & Sandy Feet
Elezanumab, is a hoped for remyelination medication being tested for effectiveness and safety in SPMS, RRMS, and PPMS. There is also a separate phase 2 study being conducted for spinal cord injury, and that trial has been awarded by the FDA orphan drug and fast track status.
We set a target departure time for 12 pm on Monday. However, the trailer wasn't ready yet, nor was I really. Though I started packing weeks ago, there were so many loose ends, and loose clothing... I was grateful for those extra hours. We started out at 7 pm, bidding farewell to a Southern California… Continue reading From California to NC- Ocrevus, Elezanumab, Clinical Trials, Homeschooling, and a freaking long distance relationship with my Husband?!? Part Two
My four year old crawled in bed with me this morning. I've been keeping a late schedule since we traveled across the country and relocated in North Carolina. However, it's hard to fall back asleep without my husband in my bed. So, I thought to write a post I’d been keeping in the back of… Continue reading From California to NC- Ocrevus, Elezanumab, Clinical Trials, Homeschooling, and a freaking long distance relationship with my Husband?!?
Can you remember having a loose tooth as a child. It hurt, just a little. The pain drew you in. You wanted to touch it. You wanted to experiment with that pain. There was a sharp edge, but that imparted an exquisite knowledge of the world. This pain was necessary to growing up. There is… Continue reading Pain and Hurt from a Narcissistic Disease- the Draw and Repulsion Of MS Pain- My story
I was nervous on the drive to my clinical trial appointment this morning. I had that nagging feeling I had forgotten something. I had my purse, my phone, some snacks... but not my cane! 😱
Kids are still asleep so I'm taking a minute to type up a blog. Damian Washington's Interview with Brittney Quiroz of A Hot MS popped up on my feed this morning and started the day out right, getting inspired. Damian Washington talks to Brittney about her experience with MS, her blog, and how she still… Continue reading A Hot MS, Damian Washington, and a little about my adventures with mobility aids
This title has been floating around in my mind for awhile. Just two weeks ago I was in an exam room at the UCI Clinical Research Park. I am currently enrolled in a trial for the remyelination drug elezanumab. Real quick, a little medical jargon and background on the drug elezanumab: "Elezanumab is a fully… Continue reading MS and Remyelination in the Time of the Coronavirus
Disclaimer- I am not a health professional. The opinions shared in this article are just my opinions. I am also sharing informational resources. Always discuss your healthcare concerns with a medical professional. I have to admit that the coronavirus has not been ringing my alarm bells. I am a person on a Disease Modifying (DMT)… Continue reading The Coronavirus (COVID-19) and the Immunocompromised/ Chronic disease community
I had a wonderful evening, spending time with family while overlooking the South African ocean. Tuning into life, instead of my MS and symptoms helps them feel less present and less pervasive. The problem with MS is symptoms are new or in flux. They don’t always feel the same. For me I have a baseline… Continue reading The New Normal, living with Daily MS Symptoms
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