Though it is a Scary Story, it’s of the realm of fiction. Therefore, it is pale when contrasted to the reality of the scary tale going on in the body of the Warriors that stand against the inner disease and demon that is MS.
Tag: multiple sclerosis
Tight Rope, Frayed Wire & Sandy Feet
(Text linked to websites, videos, and articles I used as sources for this blog post. Feel free to click, as the link will bring up a new tab and you won't use your place in the blog.) Elezanumab is another humanized monoclonal antibody currently tested in phase 2 clinical trials for RMS and PMS. This… Continue reading Tight Rope, Frayed Wire & Sandy Feet
From California to NC- Ocrevus, Elezanumab, Clinical Trials, Homeschooling, and a freaking long distance relationship with my Husband?!?
My four year old crawled in bed with me this morning. I've been keeping a late schedule since we traveled across the country and relocated in North Carolina. However, it's hard to fall back asleep without my husband in my bed. So, I thought to write a post I’d been keeping in the back of… Continue reading From California to NC- Ocrevus, Elezanumab, Clinical Trials, Homeschooling, and a freaking long distance relationship with my Husband?!?
Pain and Hurt from a Narcissistic Disease- the Draw and Repulsion Of MS Pain- My story
Can you remember having a loose tooth as a child. It hurt, just a little. The pain drew you in. You wanted to touch it. You wanted to experiment with that pain. There was a sharp edge, but that imparted an exquisite knowledge of the world. This pain was necessary to growing up. There is… Continue reading Pain and Hurt from a Narcissistic Disease- the Draw and Repulsion Of MS Pain- My story
Clinical Trial Appointment Week 52 of the Remyelination Drug Elezanumab for Multiple Sclerosis
I was nervous on the drive to my clinical trial appointment this morning. I had that nagging feeling I had forgotten something. I had my purse, my phone, some snacks... but not my cane! 😱
A Hot MS, Damian Washington, and a little about my adventures with mobility aids
Kids are still asleep so I'm taking a minute to type up a blog. Damian Washington's Interview with Brittney Quiroz of A Hot MS popped up on my feed this morning and started the day out right, getting inspired. Damian Washington talks to Brittney about her experience with MS, her blog, and how she still… Continue reading A Hot MS, Damian Washington, and a little about my adventures with mobility aids
The Coronavirus (COVID-19) and the Immunocompromised/ Chronic disease community
Disclaimer- I am not a health professional. The opinions shared in this article are just my opinions. I am also sharing informational resources. Always discuss your healthcare concerns with a medical professional. I have to admit that the coronavirus has not been ringing my alarm bells. I am a person on a Disease Modifying (DMT)… Continue reading The Coronavirus (COVID-19) and the Immunocompromised/ Chronic disease community
The New Normal, living with Daily MS Symptoms
I had a wonderful evening, spending time with family while overlooking the South African ocean. Tuning into life, instead of my MS and symptoms helps them feel less present and less pervasive. The problem with MS is symptoms are new or in flux. They don’t always feel the same. For me I have a baseline… Continue reading The New Normal, living with Daily MS Symptoms
What it feels like to have MS
What follows is my answer to the question above that I found on Quora The feelings of multiple sclerosis are described by the name of the disease. Just as there are multiple scars there are numerous feelings those create. This moment as I’m sitting here typing this, if I tune into my body I start… Continue reading What it feels like to have MS
MS specialist tries four MS drugs just to experience the side effects first hand.
This morning I found Dr. Brandon Beaber, a neurologist and MS Specialist in Downey, California for Kaiser Permeante. The video is entertaining and it makes me feel good inside to know that he cares enough about the MS experience to risk discomfort and side effects. It’s refreshing to see more neurologists and MS specialists interested… Continue reading MS specialist tries four MS drugs just to experience the side effects first hand.
ms GUIDED Bits 